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Monday, January 18, 2010

Update

Carter is still at the NICU. When he was born he had a lot of fluid in his lungs, but he did a really good job about coughing/sneezing it all out. So we were able to go home. About a day after he got home, and was really starting to eat, we started noticing that he was gargling the milk in the back of his throat and then choking on it. He would only take a couple sucks, choke, and fall asleep. We did everything to try and get him to wake up and eat more. We then tried giving him a bottle, but he choked on that as well. While he was home, he was eating less and less, and sleeping more and more. The pediatrican warned us to really keep an eye on him and make sure he wasn't turning yellow (since he was premature, I guess its a much bigger issue), becoming jaundice. Well after a day or so of this, he was so exhausted from choking that we couldn't get him to wake up at all. Well on Saturday morning, after being up all night trying to get him to eat, but not getting him to, we noticed that he was starting to look yellow. So we took him back to the hospital, where the pediatrican looked at him. His bilrubin levels were high, and they were really concered that he wasn't eating. I guess he kind of has to poop the bilrubin out, in some way, so he has to eat in order to do that. The choking issue...the occupational therapist thought that because he was early, his brain hadn't developed the ability to eat and breathe at the same time. He would just suck and suck, and not take a breath. Well when it got to the point that he would finally take a breath, he was aspirating on the milk, and taking it down into his lungs, or out his nose. Which would lead to pnemonia. She thought that we would just give him a couple days and she would work on "teaching" him how to eat and breathe. So they told us that they were going to admit him to the hosptial, put him on a feeding tube for 24 hours, then after the 24 hours, we would try and breast/bottle feed him. Well after 24 hours, we tried it, and he still choked. So we would have to wait another 24 hours and try again. Unfortuantely during those 2 days, he vomited a couple feedings up, he had severe reflux, and had quite a bit of stomach pain. They tried the feeding test again this morning, and he still choked. So now they are thinking that it may not just be something that he has to learn, but that they might be something physically wrong in the back of his throat. So the plan now is 24 more hours, and try the feeding test again tomorrow. Then on Wed they are going to do a swallow test (the premie swallow test specialist only comes in on Wed...grrrr..) For a swallow test, they will take him to radiology, and add a little bit of barium to his bottle, then while he drinks it they will take pictures of where the milk is going, and exactly whats going on in the back of the throat. Then at that point we can either rule out the possiblity of a physical problem, and will go back to trying to "teach" him how to eat every 24 hours, or deal with the physical problem. That is were we are now with Carter.
We are doing okay. My parents were able to come and stay with the kiddos for a couple days, so we can go back and forth to the hospital. Karl's sister is coming into town this afternoon to wrestle the crazies for a couple days.
Other than that, I took Kyle back to the pediatrician this morning, for a follow up on his leg. He jumped off a ledge at the zoo a week ago and has been limping since then. We took him in last Tuesday, and they couldn't see a break on x-ray, but because his bones are so small, usually you can only see the bones healing. So she had us come back today, and we took more x-rays. But they still look clear. So no evidence of anything being broken. So really there isn't a lot they can do, other than put him in a boot, and waiting a month and seeing if he is still limping at that point. But the boot can be a pain for little kids, so we just have to keep him in his tight fighting shoes all day every day, except for sleeping for the next month and go from there.
Well there is the update for now. Thanks for all the love and support!!!

8 comments:

Niki said...

Sara, I hope everything with Carter works out ok, and soon. I am so glad that you have the support of your family to watch the kids while you are going back and forth to the hospital. And I am glad that Kyle's leg is not broken! One less thing for you to worry about :) You and Carter are in our thoughts and prayers.

TrishAnderson said...

I am glad you updated so we know what is happening. We had issues with MacKenzie when she was a premie. I remember those extra four days at the hospital - they felt like torture. I do understand (although not quite the same reasoning as to why he is there) how you feel if you ever need to talk. My thoughts and prayers are certainly with you. Make sure you get his name on the prayer roll at the temple tomorrow.

mylittlegems said...

Sara- I feel for you. I hope everything turns out o.k.- as I have experienced, it always does- even though nothing seems harder than seeing your baby in the NICU.(we have had all our babies in the nicu/hospital...) I am arranging meals for this week for you. Please let me know what else you need. I can't believe that about Kyle's leg...glad it is ok- for now...didn't you just go through that thing w/ the last baby birth? I'll call you later.

Cariann said...

Sarah, We went through a lot of the same things with Devon. Please let me know what I can do to help.

familywithfivekids said...

Thinking of you and your family. Praying Carter comes home soon.

porter and karla said...

your little guy is in our prayers. Please let me know if i can help in any way, im really like just around the corner so i can tend, or do a meal or whatever is needed. hang in there!p.s. he is just adorbale and that is what we want to name our next boy... its a mix of KARla and porTER.

Carol said...

Oh, Sara! I had no idea little Carter was having so much trouble! I'm sorry!!! Keep us all posted! Love you, honey!

Anonymous said...

Sara,

I just read your blog and haven't even been on line for a while - so I hope that Carter (cute name) is doing better and that you can get that boy home soon! If there is anything that you need - please call me. My thoughts and prayers are with you.